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Let communities lead
Scaling up the work of people living with HIV and key populations on the path to end AIDS
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The theme for World AIDS Day 2023, “let communities lead”, pays tribute to the decades long leadership of communities in the HIV response. The people most directly affected by HIV have been at the forefront of bridging the gap between essential health services and underserved groups, including people living with HIV and other key populations. Communities also play a critical role in challenging harmful laws, policies and social norms that block access to HIV services.
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By partnering with key population-led organizations, civil society, national governments, the Global Fund, the UN and others, UNDP helps strengthen community leadership and scale up HIV responses to end AIDS as a public health threat by 2030.
This includes support to strengthen community-led monitoring and service provision.
In Burundi, UNDP and the Global Fund are supporting community-based non-governmental organizations (NGOs) that serve key and vulnerable populations. Burundi is one of several African countries within reach of the 95-95-95 targets, but progress in the region is uneven: key populations continue to have much higher HIV prevalence than the general population.
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In addition to providing HIV services for more than 4,000 people, Burundi-based NGO HUMURE has supported people with psycho-social and legal assistance who were arrested while conducting HIV education. A partner of HUMURE, MOLI works with communities across Central and East Africa to accelerate change, including community-led and managed efforts to prevent and respond to rights violations based on sexual orientation, gender identity, gender expression and sex characteristics.
In Tajikistan and across Eastern Europe and Central Asia, UNDP and the Global Fund have been supporting the roll out of the REACT system.
“The REACT project is precisely aimed at human rights protection,” says Farishtamoh Gulova, the coordinator of REACT. “Initiated four years ago, it focuses on addressing human rights violations, especially among target groups such as people who use drugs, people living with HIV and sex workers.”
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In 2022 alone, the community-led system documented 810 rights violations, with more than half of these cases involving violations against individuals living with HIV. This type of monitoring is critical to provide immediate support to individuals, as well as to advocate for structural change in healthcare and police settings.
In Sudan, community-led efforts have been critical in supporting life-saving treatment for people living with HIV since violence erupted in April 2023. UNDP worked closely with the Sudanese People Living with HIV Care Association networks across Sudan’s 18 states to track people on antiretroviral therapy (ART) and ensure they had access to treatment. UNDP also helped map all functional health centres offering HIV services and assess their antiretroviral (ARV) drug stock across the country, delivering two emergency procurements of HIV medicines and testing kits. Supporting more than 75 percent of people living with HIV to access ARVs during crisis would not have been possible without the leadership of communities.
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Removing barriers to community leadership, such as limited funding and punitive and discriminatory laws, can further strengthen the HIV response.
Globally, about one in eight people who inject drugs have HIV. In Zimbabwe, criminalization of drug use discourages them from accessing HIV services while creating legal barriers to programmes that could prevent HIV transmission. Though parliamentarians’ views have shifted to more rights-affirming interventions, criminalization and access to HIV services remain challenges.
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Knowledge Mupemebe, 27, advocates for the rights, health and dignity of people who inject drugs through the Zimbabwe Civil Liberties and Drug Network (ZCLDN). He represents ZCLDN on the Zimbabwe steering committee for #WeBelongAfrica, a UNDP programme supported by the Government of Sweden and the Embassy of the Kingdom of the Netherlands that has helped create space for key populations to engage with policymakers. With this support, Knowledge and other civil society leaders have recommended changes to improve laws, policies and Zimbabwe’s approach to health services for people who inject drugs.
“Community leadership fosters a sense of ownership and sustainability within the HIV response,” says Knowledge. “By involving people who use drugs in the design, implementation and evaluation of HIV services, community leaders empower the community to take charge of its own health and well-being.”
Through its SCALE initiative, UNDP funds key population-led organizations across 16 countries, with the aim of removing structural barriers to HIV services while strengthening key population leadership for a more sustainable HIV response.
Many key population-led organizations are leveraging immediate opportunities in their countries through these grants. Equality for All Foundation in Jamaica is improving the legal literacy of key populations in relation to the country’s ongoing constitutional reform, understanding its impact on the LGBTI community and ultimately establishing a strategic plan focused on increased political engagement. In Almaty, Kazakhstan, Answer is supporting ongoing legislative efforts that help ensure equitable access to specialized social services for people living with HIV, including in collaboration with the Ministry of Labor and Social Protection.
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Embedded in the grants is a commitment to support the next generation of community leaders and reflect the intersectional realities of marginalized people. The Sex Workers Education and Advocacy Taskforce in South Africa aims to establish a community-led advice office, which will provide legal advice to sex workers, LGBTI+ people, homeless people and migrants. Philippine Anti-Discrimination Alliance of Youth Leaders (PANTAY) is working to support youth leaders and advance HIV prevention for young transgender people and men who have sex with men in the Philippines, where nearly half of all new HIV infections are among young people.
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“With the help of partner local governments and their elected youth leaders, we seek to harness the power of digital interventions to mobilize young people. We will foster open conversations among youth on topics of sexual and reproductive health and HIV/AIDS advocacy,” says AJ, Project Officer for Training and Implementation at PANTAY.
At the halfway point of the 2030 Agenda, no country is on track to achieve the 10-10-10 targets. With 9.2 million people still in need to HIV treatment and a 90 percent funding gap for key population prevention in 2022, supporting and scaling community leadership is vital.
“Let communities lead” does not mean partners and allies can stand idly by. UNDP joins this call to action to strengthen and fund the leadership of people living with HIV, other key populations and communities. Communities have the knowledge, skills and experience to meet their own health needs. UNDP and partners must stand with them shoulder to shoulder to remove the barriers affronting their dignity and standing in the way of their health and well-being.