by Muhammad Omer Hayat, Communications Officer, UNDP Pakistan
Sehat Dost: Digital solutions to HIV-related discrimination
November 25, 2024
“Don’t come here again,” Tabish* was told by a doctor when seeking HIV medication. “Why do you indulge in activities that require such medication?”
Based in sprawling Rawalpindi, near Pakistan’s capital, Tabish recalls their traumatizing experience during what should have been a routine health visit.
As a transgender person living with HIV, Tabish’s story is all too common among key populations – marginalized people who are disproportionately affected by HIV. In 2024, the UNDP-supported HIV Stigma Index Study 2.0 documented the impact of stigma on people with HIV in Pakistan. In healthcare settings, over 16 percent of transgender respondents reported being denied services because of their HIV status, followed by 7.6 percent of people who use drugs.
Experiences of discrimination are often rooted in social exclusion, which can begin early in life. “I left my home almost 10 years ago,” Tabish says, pausing briefly before adding, “my parents didn’t accept me – a transgender child.”
Leaving home also cut Tabish’s education short. “I studied till Intermediate (high school) only.” And like many others in this situation, Tabish never learned about HIV prevention and treatment, neither in school nor in social settings.
Social exclusion, coupled with limited access to sexual health information, leaves many individuals vulnerable to HIV. Without adequate awareness, people may unknowingly engage in behaviours that increase the risk of infection.
A positive HIV diagnosis often compounds their challenges: 17 percent of people with HIV reported facing discrimination from family members after disclosing their status, and 5 percent lost their jobs.
Pakistan’s digital gateway to HIV services
But digital technologies can empower people like Tabish to access healthcare free from stigma and discrimination. With support from the Global Fund to Fight AIDS, Tuberculosis and Malaria, UNDP launched Sehat Dost, a smartphone application providing HIV services to key populations in Pakistan, developed with key populations and community-based organizations (CBOs). Sehat Dost helps vulnerable people access HIV services, providing both preventive and post-exposure treatment and education to encourage healthy behaviours.
Integrated with a portal developed by FHI360 and the World Health Organization (WHO), a standout feature of Sehat Dost is its one-click access to order HIV self-testing kits to your doorstep – providing privacy and eliminating the risk of stigma in health facilities.
This is one feature Tabish, who found Sehat Dost through a Facebook ad, uses frequently for their partner, who avoids physical clinics. “For us, getting the kit at home is the safest recourse,” they say.
Globally, UNDP supports people living with HIV and key populations to overcome barriers to HIV services like stigma and discrimination – a key component of the 10-10-10 targets committed to by countries, including Pakistan. These efforts include the use of digital technologies, which facilitate a more coordinated and higher quality care at a much lower cost, increase access to specialized medical expertise, help build more inclusive health systems and, particularly in the case of HIV, to access life-saving health services.
Sehat Dost, which allows users to maintain anonymity and does not require a mobile number or an e-mail address to sign up, also features an extensive resource library with key information on HIV prevention and treatment along with a self-assessment tool for HIV risk.
Users can also connect with local CBOs for tailored support, access vetted healthcare professionals and find nearby HIV services, including antiretroviral therapy centres, using geotagged locations on Google Maps for easy navigation. Lastly, to bridge the lack of communal bonds, the app houses a discussion forum managed by CBOs where registered users can share their experiences and learn from each other in a safe environment.
For Tabish, the platform has been of immense help. “Consulting doctors has become easier through this app because Dostana [the CBO serving Tabish’s area on Sehat Dost] is able to connect me directly with a doctor who understands my needs and fears,” Tabish tells us.
By the numbers
Launched in May 2024, Sehat Dost currently serves individuals in 13 districts across two of Pakistan’s four province provinces – Punjab and Sindh. Although people from other areas can access the app’s resources, at this stage key features such as connecting with CBOs and locating nearby health centres are available only for Punjab and Sindh, regions with the highest number of people living with HIV. The most popular features of the application are: location of nearby health centres, the resource library and the discussion forum.
As of October 2024, Sehat Dost has seen:
A discrimination-free future
The world is off-track to achieving global health and development goals, including the 10-10-10 targets for HIV by 2025. UNDP remains committed to supporting countries and communities to fast-track action on the commitments made in the 2021 Political Declaration on HIV and AIDS, including efforts to reduce the discrimination, criminalization and gender inequality that continue to limit access to HIV services globally.
Sehat Dost is one such example. It has already made a significant impact, as seen through its uptake and the experience of users such as Tabish, an early adopter. Despite living with HIV for years, Tabish still found the app transformative in how they interact with healthcare providers.
“It adds a safety buffer for those in vulnerable situations. I wish something like this was available 10 years ago.”
Promising usage metrics demonstrate the potential to expand its reach to the provinces of Khyber Pakhtunkhwa and Balochistan and drive demand through awareness campaigns. Alongside training for healthcare providers to reduce discrimination, Sehat Dost will transform access to HIV services in Pakistan, offering critical support to people facing discrimination and barriers to healthcare.
*Name changed to protect identity